Don't know how to share with everyone, will reply here. First, I really appreciate any connection with some hope. This all started for me as pre-op for knee replacement surgery, October first. Went from chest X-Ray to ct to PET scan to one biospy. Through all this I have had two candles knee surgerys, October 31, only knew because I called the Surgery Center myself, called my PC group to tell. As far as know go ahead, scheduled for Nov. 12, canceled the morning of. To this point I have called, messaged, been on healthevet .site trying to find out anything. No contact from any Dr. at all. Saw my psychiatrist for regular visit, vented for sure, biopsy was next day, she tried to intervene by calling my "group team", getting a promise that I would get results. Waited through Thanksgiving to Wed. after. Call that afternoon from a Josh at the clinic, "it is adenocarcinoma, but if you have have it, the best kind". Mind you, did not see or hear from any Dr until a retired Oncologist on December 3. That's where should be able cure, but must talk to the mystery "tumor board" at local hospital. Next was, you're complicated, see aforementioned surgeon in other post and his kind prognosis.
This is not a bash VA so much as for me and for someone with my mental health issues has made me only crasier!!! Not waiting around, have spent hours and hours on phone calls, VA health site, regional Hospital site, just Fri. Patient Advocate, Women's Program Manager, local and National. Asked and begged for independent opinion. They will not refer me out, they can't, and come back Mon. to the retired Oncologist again.
From own research I am gleaning it's been much more complicated from the first X-Ray on October first. Looking again last night, there are at least three sites, and we're deemed malignant, metastatic, NOT confirmed by VA radiologist though, so still previewing and I cannot see actual fell because some are from an outside providers and not confirmed by VA..
I guess Hot Line or one of my senators, on joy. Did make a pact with my Vet Center counselor, plus could not leave like that. Just would like a life of no life to live as long as possible. Coleen, understand this might not be posted. Just had to vent. Talk about trust issues!!!!!@