@sas2012 I agree, you should check out a comprehensive medical center in your area or a university hospital. Just call them and see if you can get an appointment. You may have to travel a distance , but I tell you, it’s worth it. When the local doctor said they didn’t know what was wrong and even were puzzled by the MRI, my husband called the state university and hospital. He explained everything and the university made an appointment with neurology for us. In 4 days I was being seen by the neurologist , who knew exactly what I had. They have continued my care for about 8 years.
Think you could look up a comprehensive medical center tomorrow?