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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @sissyhand, Welcome to Connect. You’re certainly going through a huge medical event right now and it’s understandable to feel overwhelmed. Especially if you’re being recommended for a BMT or CAR-T Therapy following your treatments for what I think is Follicular Lymphoma? I read in a previous comment that you have FL.

If you do require one of those treatments there are different protocols depending where you have the procedure done. If you are an ‘in-patient’ for 6 or so weeks, then having an immediate caregiver 24/7 isn’t usually necessary during that time. But you be expected to have someone (relative/friend) who can be called should the need arise for errands, consults, that type of time. Some facilities are out-patient but you need to lodge nearby with a caregiver 24/7 for a period of time. That can be more of a challenge for some people.
The best place to start is with the social worker at whatever clinic or hospital you choose for the procedure. A larger teaching/research hospital who do many of these transplants is preferred.

You mentioned Mayo…which would be an excellent choice. Which campus are you considering?

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Replies to "Hi @sissyhand, Welcome to Connect. You’re certainly going through a huge medical event right now and..."

@loribmt thank you so much. I am close to Jacksonville, as I live in Tallahassee so I think my oncologist was referring me there.
I definitely would need to get some help since I am single and have no family. I am very nervous about this option and was hoping my onc would do a watch and wait if I go into remission. He wants to get the referral stated though fo a bmt. I just had my mid chemo pet scan with a deauville score of two so that is positive. I’m more anxious of how I’m going to pay bills and who I can get to help me as far as being a caregiver for a bit.