Hi, @hanya. What a great place to be…at the beach, enjoying the breezes and the water! In a month I’ll be doing the same! Can’t wait! ☺️

Sorry to hear your recent BMB showing a possible change in your myelofibrosis. Hopefully with the new medication the Ojjaara will help slow the progression.

You mentioned having some side effects of the medication, such as GI problems. Glad to hear you’ve gotten that under control. What a pain in the…well, you know! 😅

As for possible heart related issues. They are listed in possible side effects but from what I’m reading they’re not common. Certainly if you experience skipped beats or heart palpitations report that to your doctor immediately.

Possible side effects of meds have to be listed, even if they are not common. I know some of what we read can scare the bejeepers out of us! But we also have to weigh the benefits against the possible risks! In the case of MF, if you can prevent any further damage of the marrow and keep producing healthy blood cells then it is important to stay on the Ojjaara.
Best wishes for only good news with your upcoming tests! Will you please let me know what you find out? Hugs…enjoy the beach for me!