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DiscussionSeveral inoperable paragangliomas, on lanreotide, now big mass
Neuroendocrine Tumors (NETs) | Last Active: Oct 4 3:33pm | Replies (13)Comment receiving replies
Replies to "@hopeful33250 I’ve been serially scanned since my first tumor which was very large in 2001 and..."
@floridanana I applaud your knowledge of your health. You have a 25 year cancer education and it shows that you've been paying attention! More than once you've had me researching your condition and medical terminology. I'm a student of this cancer and you've certainly taught me some things in this thread. I also must mention that as a fellow patient, I enjoy your colorful use of adjectives such and "huge" and "explosion" when describing your mass. I hope you talk like that to your medical team! Would love to be there if you. 🙂 I hope you continue to post and keep us in the loop with your journey.
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@floridanana
It sounds like you have had excellent care! I'm looking forward to hearing about your appointment at Mayo Clinic. Mayo is a great place to review complex medical issues like yours.