@laura1970 so sorry to hear that.i got the scaring from surgery when I was young on my lower spine.i was diagnosed with it in 2010.i have done good with it until now.i starting having trouble with my left foot.my foot flaps the floor when I walk but I am 72yrs old and it really hasn't bothered me. I don't have pain real bad i feel like I have been lucky.It affects everyone different I just wished they would do more research on it. You are the only one that I heard of having it.