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Gastroparesis with severe symptoms!

Digestive Health | Last Active: 2 days ago | Replies (692)

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Profile picture for itiswhatitis @itiswhatitis

I'm right there with your wife. I have advanced cardiac autonomic neuropathy with vagal nerve involvement. My digestive system is shutting down. It started with gastroparesis and has led to dysphagia and a colon that doesn't really have the peristalsis movement anymore. I have been through 3 feeding tubes, and if I hadn't had complications from the feeding tubes, they would've been awesome. My diabetes type 1 is completely out of control because I don't digest food properly. The feeding tube gave me control. Plus, you can still eat with a feeding tube...so it is not as scary and limiting as people think. I had it removed due to rare complications and cannot get another. I also have severe swings in blood pressure to the point that it is threatening my life. Dizziness and weakness are hallmark symptoms. They are talking to me about a vagus nerve stimulator. My sister had the stomach stimulator/pacemaker and it didn't really work for her. Anyway, wanted to reach out with my experience to show you...your wife is not alone. I pray things are going better.

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Replies to "I'm right there with your wife. I have advanced cardiac autonomic neuropathy with vagal nerve involvement...."

@itiswhatitis
Thank you so much for writing your experience. I am going to pass on to my wife. She thinks she is unique and something specific she is doing or not doing causing it.

He glucose rollercoaster like yours is completely out of whack. Even though she has an excellent diabetic endroctronoloigist I don't think she knows how much the gastroparesis affects how food is digested and what normally occurs with ingestion of food is not the same with someone with gastroparesis.

Thank you again as a caregiver for my wife really appreciated. I just looked at your I.D. again what an unique I.D. and what life is all about.