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This is a different kind of message……
Ok, here goes…..I hope I’m not jinxing myself 🤞🙏
I am 18 months post PMR diagnosis…….numerous prednisone ups and downs, disagreements with rheumatologist, and trying every alternative therapy and bandaids in the books.
After 6 months Kevzara, 3 months OFF prednisone…….
My life is “pretty darn good!” I never thought I’d see the light at the end of the very long tunnel. Over the last couple of weeks, I wake up most days in disbelief abt how well my body responds to every move I make. My functional movement therapist is also amazed. I am back to all….hike, bike, golf, swimming laps, albeit not at my previous levels yet 😎, but looking forward with anticipation to test and see my new found capabilities.
(Reminder I am a 79yo woman)
Lastly……this group has been a savior….. wish I found it sooner. I owe a lot to you all for my perseverance and support on this journey, that no one should go thru alone. Thank you.
Hang in there everyone, and hope that my road is your road ( and my road stays straight)
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@tweetypie13
It is nice to read a post about someone successfully stopping Prednisone. It's a great feeling waking up in the morning without pain and without having to decide how much Prednisone to take. Now you just need to remember to do your Kevzara injections.
What is the plan for stopping Kevzara? My rheumatologist has no plan to stop my monthly infusion of Actemra.
I don't have any disagreements with my rheumatologist anymore. Now my rheumatology visits only focus on how I'm feeling instead of how much Prednisone I am taking. My messages to the rheumatology department between visits have also stopped. I used to frequently message them that I increased my Prednisone dose because of a relapse.