Thank you so much for all the replies. Seven months ago, I was hiking, camping, bike riding, working out, and now this disease has put a complete halt on all that. I've managed to taper down to 6mg prednisone, but the mornings are brutal; lots of pain and stiffness. My CRP and ESR levels are normal, so apparently, I'm one of those few that don't show elevated levels but still have PMR. When I first came down with the disease, before I started prednisone. I could barely walk in the mornings, and I was unable to raise my arms higher than stomach level because of the stiffness and pain. I also ended up in ER unable to barley move at all and in severe pian. Of course, they didn't know what was wrong with me. They did blood work and a CT scan. Everything was normal. So, they shot me up with Morpheme and 50mg of Prednisone and sent me home in a wheelchair. Next day I felt great but that only lasted a few days. Not sure what may have triggered the PMR in all of you but here is what happened to me. In Jan of 2025, this year, I was scheduled for surgery for enlarged prostate. Four weeks prior to that I came down with a respiratory illness that was going around. One week prior to surgery I recovered from that. Two weeks after the surgery I came down with the flu, probably caught in the hospital. Within one month of the surgery, I started hiking and riding again but started to notice pain in my pelvis area and thought it was from the surgery. Then in a few days I woke up in the morning with stiffness and pain in hips and shoulders. So, I'm guessing all of that may have contributed to triggering the PMR. I can't believe after all these years they still don't know what causes it. Anyway, I would love to hear from you all and others timeline on what transpired prior to getting PMR. I'm sorry that all of you are going through this and I wish you all better health now and, in the future. Note: I use ChatGPT, an AI app, and it has given me a plethora of information on PMR. I've learned more from that than I have my doctors.
@tomek456 Hi,
Normally golf, walk the dog, do yoga, dance in a show choir and jump up from bed! Just diagnosed and wondering if I had a virus prior to the pain and stiffness starting. We were in Portugal on a bus tour and my husband developed a cold and cough. There were a few others with coughs, so not sure what virus as no one tested for Covid. I was fine, but when I got home, I noticed pain and stiffness in my anterior and posterior hip muscles and thought it was from the trip as I had to push and pull both suitcases. ( my husband was using a walker). However, the pain/stiffness continued and my CRP was 40. I wonder if I also had the virus with no symptoms and the PMR then started from that. My Family Physician in Calgary was able to contact a rheumatologist right away and he diagnosed PMR. Luckily, I will be seeing him in January. I am on 15 mg of Prednisone and note that my symptoms still fluctuate. Yesterday, I was great and today, not so much. LOL