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Will soon have a Bone Marrow Transplant: What can I expect?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 11 hours ago | Replies (31)
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Profile picture for sissyhand @sissyhand

@loribmt I am in a similar situation. I am completing my chemo around the end/first of the year (and my mid cycle pet scan was positive-Deauville score of 2). My onc wants me to do a BMT and is placing a referral. I am worried and anxious because I am divorced with two kids and no living family other than my kids, so am not sure who I could get as a caregiver. All the thoughts are going through my head (I have bills, mortgage, etc) and not sure how I can do this as I have no help. I guess I will need to just go to the consult and discuss my concerns and fears and see what Mayo suggests. This is all so overwhelming.

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Replies to "@loribmt I am in a similar situation. I am completing my chemo around the end/first of..."
Lori, Volunteer Mentor | @loribmt | Oct 3 9:41am

Hi @sissyhand, Welcome to Connect. You’re certainly going through a huge medical event right now and it’s understandable to feel overwhelmed. Especially if you’re being recommended for a BMT or CAR-T Therapy following your treatments for what I think is Follicular Lymphoma? I read in a previous comment that you have FL.

If you do require one of those treatments there are different protocols depending where you have the procedure done. If you are an ‘in-patient’ for 6 or so weeks, then having an immediate caregiver 24/7 isn’t usually necessary during that time. But you be expected to have someone (relative/friend) who can be called should the need arise for errands, consults, that type of time. Some facilities are out-patient but you need to lodge nearby with a caregiver 24/7 for a period of time. That can be more of a challenge for some people.
The best place to start is with the social worker at whatever clinic or hospital you choose for the procedure. A larger teaching/research hospital who do many of these transplants is preferred.

You mentioned Mayo…which would be an excellent choice. Which campus are you considering?

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