Thank you so much for your comment.
My daughter and I have realized that we are in a medical maze and if Michael is to get the care he needs, it will be up to us to ensure that.
I believe that my daughter has asked the doctors her questions, but she feels they dismiss her. Perhaps she isn't asking the right questions in the right way.

We will continue to act in my grandson's best interest, while accepting the fact that we do not have final say on the outcome.

Connecting with others, is and will continue to be, a resource of strength and hope.