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Any experience with taking Kisunla?
Caregivers: Dementia | Last Active: Jun 25 8:52am | Replies (67)Comment receiving replies
I'm so sorry that you and your husband had to go thru that. Sounds very scary for both of you. My husband is early in his Alzheimer's diagnosis, so I have been hoping this will help. He still has to have the PET scan before even making an appointment for his first infusion. He wants to try it. I hope the medicine doesn't make it worse. It's so hard to know what to do, since, as you said, the confusion and memory issues are already there. I am sending nothing but good thoughts to you and your husband.
Replies to "I'm so sorry that you and your husband had to go thru that. Sounds very scary..."
@elm123
We are also in the evaluation process…he has had the 2 blood tests (waiting on results from the 2nd) then, if it seems like a plan, he will have the MRI, then PET scan. Not sure if Kinsula or Lequembi will be the recommendation, tho I do prefer the 1x month schedule as it will be easier on him. Best wishes!
@elm123 We are at this same crossroads. My husband has had the initial blood tests, and will be scheduled soon for the MRI. PET scan is booked for early June. Will the these blood tests/MRI/PET scan give a diagnosis, or can that only come from a doctor? I’m worried the diagnosis will depress him further (and he’s already down in the dumps, pretty much every day). Just want to know what to expect (as much as possible so I can prepare myself and help him.). Best to you and your husband! Thank you for writing!
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@elm123 well it turned out he has positive blood cultures for E. coli and some other one. He’s in hospital to receive iv antibiotics. So unknown if related to infusion? He is much better already tho. And I’m still happy tried the infusion. Visit with neuro Oct 9. Will see where we go from here