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Replies to "@ropnrose yep. I'm on Kevzara and love it. Adrenaline insufficiency vs Prednisone withdrawal is academic -..."
Polymyalgia Rheumatica (PMR) | Last Active: 17 hours ago | Replies (15)
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@ropnrose yep. I'm on Kevzara and love it. Adrenaline insufficiency vs Prednisone withdrawal is academic - I only care about a solution that does not involve an alternate immunosuppessant or increased Prednisone. I used to be very active and am terribly restless with PMR. Needlework, learning Mah Jongg and my Australian Shepherd have gotten me thru.
1 mg a month is intolerable for me.
But I'm excited - have a Beginning Pilates reformer class next week and will be returning to the gym. Also see my rheum, who is wonderful.
Replies to "@ropnrose yep. I'm on Kevzara and love it. Adrenaline insufficiency vs Prednisone withdrawal is academic -..."
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@aussiedogmom glad to hear that Kevzara is working so well. Lots of good reports about it. But for all of us it does remain very important to try to distinguish between adrenal insufficiency or PMR pain when reaching the low doses. Simply because while PMR is very painful, adrenal insufficiency is dangerous. There are tests that can tell whether the adrenal glands are starting to wake up again after their prednisone sleep. My understanding is that if they - unfortunately - don’t wake-up then prednisone can’t be reduce past a certain low level maintenance dose.