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DiscussionTarlov Cyst on the spine: Any advice?
Spine Health | Last Active: Apr 21 4:48pm | Replies (219)Comment receiving replies
Replies to "I have. 3.1x2.3x1.1 tarlov cyst at the s3 level ...where the sciatic nerve is. I'm a..."
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@diannj56 what you describe are classic TC symptoms. Sometimes our nerve pain is not perfectly aligned with the ‘typical’ pattern for a certain level of pain- eg s2 vs3 or lumbar v sacral. I went through this for years and even had an unnecessary discectomy. Ideally you can see a TC specialist. I know insurance can be a real barrier to this but it is worth the fight! What state do you live in? There are TC groups on Facebook that offer a wealth of info. You can also start at the Tarlov Cyst Foundation website. Don’t give up - many MDs are unfamiliar or have historically been taught that TCs are unsymptomatic (and some are), but that’s not always true! Especially with the falls that you have had (I had similar and that was the beginning of my journey to understand this disease (tarlov cyst disease). Also there is some scientific literature suggesting that the drain + fibrin glue procedure is not as good as other approaches (again see tarlov cyst foundation)