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Lori, Volunteer Mentor avatar

My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 2 3:09pm | Replies (781)
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My husband is one year post SCT for B-ALL on Aug 23. They let him postpone his one-year testing until we returned from our Alaska cruise. Yesterday, they told us while the testing is still showing no leukemia there is indication that it is returning. He has to repeat the bone marrow biopsy in a week, and they are preparing him to start undergoing immunotherapy and car-t therapy. They want to stay ahead of the leukemia. The immunotherapy will be a continuous pump for 30 days with the first week in the hospital. He is determined to keep fighting but this is not the news we wanted to hear.

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Lori, Volunteer Mentor | @loribmt | Oct 2 9:23am

@clock456
Oh gosh, that’s news no one wants to hear! But how fortuitous that his doctors are catching the indications early and are preparing for some quick intervention! CAR-T has been really gaining ground for targeted treatment of ALL. I wish him all the best as he enters this new phase of treatment.

I know this is a time of mixed emotions with just returning from a glorious vacation in Alaska. I hope you had a wonderful time on the cruise. Maybe print out a couple of your husband’s favorite pics to have in his hospital room when he starts his immunotherapy.
Please keep me updated with his journey. Will this be the same BMT team at Mayo-Jacksonville?

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