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Please help seronegative inflammatory arthritis

Autoimmune Diseases | Last Active: Oct 4 9:56pm | Replies (33)
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Please any help would be appreciated. I’m a mess. Dr Barr has ignored that I had a partial response to anti inflammatories he’s diagnosed me with EDS even with widespread fibrotic marrow change. I don’t have marrow disease this has been checked and from my research this can only be caused by either this or a chronic inflammatory condition

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Replies to "Please any help would be appreciated. I’m a mess. Dr Barr has ignored that I had..."
lucyrutland | @lucyrutland | Oct 3 9:59am

@sas2012
I can only suggest you go for a second opinion at a bigger hospital or more reputable rheumatology department. Good luck. And- well done for researching this and understanding it all, impressive.

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Becky, Volunteer Mentor | @becsbuddy | Oct 3 7:17pm

@sas2012 I agree, you should check out a comprehensive medical center in your area or a university hospital. Just call them and see if you can get an appointment. You may have to travel a distance , but I tell you, it’s worth it. When the local doctor said they didn’t know what was wrong and even were puzzled by the MRI, my husband called the state university and hospital. He explained everything and the university made an appointment with neurology for us. In 4 days I was being seen by the neurologist , who knew exactly what I had. They have continued my care for about 8 years.
Think you could look up a comprehensive medical center tomorrow?

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