Connect
Discussion
Comment receiving replies
Replies to "@dadcue has discussed adrenal insufficiency when stepping down Prednisone. He has some good insights. There's the..."
Polymyalgia Rheumatica (PMR) | Last Active: 17 hours ago | Replies (15)
Comment receiving replies
@dadcue has discussed adrenal insufficiency when stepping down Prednisone. He has some good insights. There's the possibility that your aches aren't necessarily a flare, but adrenal insufficiency. When I got to 5 mg., I reduced 1 mg/month. It has been working for me (just started 2 mg.) But, I'm also on Actemra infusions and I believe they have helped me taper from 10 mg. to the present, without issues. I have some minor hip and knee aches, but I'm an active 69 yo.
Replies to "@dadcue has discussed adrenal insufficiency when stepping down Prednisone. He has some good insights. There's the..."
Connect
@ropnrose yep. I'm on Kevzara and love it. Adrenaline insufficiency vs Prednisone withdrawal is academic - I only care about a solution that does not involve an alternate immunosuppessant or increased Prednisone. I used to be very active and am terribly restless with PMR. Needlework, learning Mah Jongg and my Australian Shepherd have gotten me thru.
1 mg a month is intolerable for me.
But I'm excited - have a Beginning Pilates reformer class next week and will be returning to the gym. Also see my rheum, who is wonderful.