radiation

Posted by xahnegrey40 @xahnegrey40, Sep 29 7:44pm

So I started radiation today (9 Sept '25) 9 weeks -42 sessions..
It is photon ( IMRT and IGRT)...
My approved providor-Urology Austin apparently does not offer proton beam...
So I had rectal spacer put in 2 weeks ago and we are off and running...I wonder if anyone has had exp with the photon radiation..my doc said the lose dose plus small area of cancer in prostate would be a good match plus I have metastis in 2 pelvic lymph nodes. He said that the very small radiation splash in pelvic area might be beneficial if there any very small pockets of cancer not detected by PET scan..
so anyone with knowledge or exp with this type radiation technique

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

mjp0512 | @mjp0512 | Oct 1 9:36am

In reply to @xahnegrey40 "my team powering up collider..." + (show)

@xahnegrey40

LOL 🤣...I had 2 girls. One was fun, the other was all business. Hope Ms. business is the one pushing the button.

dpayton | @dpayton | Oct 1 10:06am

In reply to @jeffmarc "@bens1 If your radiation works like everybody else’s, the doctor is not directly involved when you..." + (show)

@jeffmarc Same here Jeff. I met with the doctor every Friday just making sure I was doing ok.

dpayton | @dpayton | Oct 1 10:08am

In reply to @mjp0512 "@xahnegrey40 LOL 🤣...I had 2 girls. One was fun, the other was all business. Hope Ms...." + (show)

@mjp0512 OMG I had the same thing. Funny as heck. She was a workout freak and she'd show me what she did at the gym that morning. I just laughed my butt off.

rbtsch1951 | @rbtsch1951 | Oct 1 12:39pm

In reply to @bens1 "@xahnegrey40 I had photon radiation but it was with the mridian machine which is one of..." + (show)

@bens1

Just completed SBRT yesterday for Gleason 9, Grade 4 localized disease. One PSMA equivocal lymph node was included in the total volume of radiation. My RO was never present in the Viewray MRIdian control room but I was told he was reviewing the digital images before treatment started (at least at the first session).

I was a bit disappointed that I did not meet him in person as my initial consultation was a telehealth visit. When I have my follow up in 3 months I insisted on an in person visit even though I was offered the option of telehealth again. (I live 120 miles from the medical center where I chose to be treated.)

bens1 | @bens1 | Oct 1 1:26pm

In reply to @rbtsch1951 "@bens1 Just completed SBRT yesterday for Gleason 9, Grade 4 localized disease. One PSMA equivocal lymph..." + (show)

@rbtsch1951

As I said, my RO was there for each session but I am not sure for how long. Maybe there is some leeway and differences from one hospital to the next regarding reviews of the treatment plan in real time, adaptive changes and the hospital assigned responsibilities regarding the physicist and dosimetrist in the control room. Interesting question though. I got to meet and speak with my RO before, during and after treatments.

mjp0512 | @mjp0512 | Oct 1 1:59pm

RO checks the CT scan daily before the tech pushes the ZAP button. I meet with him every Tuesday.

rbtsch1951 | @rbtsch1951 | Oct 1 2:12pm

In reply to @bens1 "@rbtsch1951 As I said, my RO was there for each session but I am not sure..." + (show)

@bens1

I am being treated at UCLA and have complete confidence in their plan and approach. It’s just that I am old school and still find “the laying on of hands” by a physician comforting. At the end of the path it’s all good!

jeff Marchi | @jeffmarc | Oct 1 8:33pm

In reply to @bens1 "@jeffmarc I actually did see the doctor in there. I am not sure how long she..." + (show)

@bens1
It sounds like the Radiation combined with the MRI must require an oncologist in the room. It’s not something that is discussed much at all. Most people don’t have MRIs involved in their radiation And I know it’s very uncommon for an oncologist to be involved in those case when only a CT scan is used.

That could explain why three people were in the room wit the MRI.

surftohealth88 | @surftohealth88 | Oct 1 8:56pm

But what than RO does -what is his role ? Just makes a plan of what will be done ? It is really strange concept 🧐 IMHO. I would expect that he supervises a process , at least.
It would be the same as if RARP surgeon tells his tech assistant what needs to be done and than leaves the room 😰 ! I wish I did not know about this 😬...

jc76 | @jc76 | Oct 2 7:04am

In reply to @surftohealth88 "But what than RO does -what is his role ? Just makes a plan of what..." + (show)

@surftohealth88
Can't speak for what others had or did not had only my personal experience.

My UFHPTI R/O met with me prior to my first treatment, came into treatment room while I was on table, and over intercom my tech team said little delay as R/O going over plan.

I think we should stick to what our personal experiences with our radiation treatments and not infer R/Os never come to treatment room or control room. At least at UFHPTI they do.

You post stated would expect he supervisses a process at least. And that assumption is correct at least at UFHPTI which confirms your post.