@mnewland99
Hi Marie! An update:
Just a quick update: my current chemo (capecitabine) seems to be working, it's brought my CA19-9 down from 795 to 23! Last CT scan showed no new progression, maybe a little bit of shrinkage.

BUT I seem to have developed either ascites, or an infection. My upper belly has blown up like a balloon, I look like I'm about 7 months pregnant. Very uncomfortable, and some shooting pains. I went to see my GP on Monday, she actually got my oncologist on the phone (a miracle), and they ordered pee and blood tests for me which I had right away on Monday, and a CT scan which I had yesterday. They really need the radiologist's CT scan report to know what's going on, so they can treat it. So, I wait.

I also spoke to the clinical trials doc on Monday as well, my turn will likely be January-February. That's ok as long as my current chemo continues to keep me stable until then. Just gotta get my tummy deflated somehow so I can just live a tiny bit normally.