Hi Colleen-
Thanks for the nudge...we have been busy with lots of travel and family in. So, I am guilty of being on the sidelines for awhile...sorry!
My wife, Kay is doing pretty well. We were to Mayo, Florida June 18-21 for an echo and follow up PET SCAN, thinking we would get a little closer review from our oncologist there, but not sure it was worth the expense.
We met with him after her tests, and the radiologist had not read the scans yet. Our oncologist compared the prior CT Scan (done locally), but he was unable to conclude what he saw. He said he would get the report and call us the following morning. That was on June 21...still no call! We have sent him a message...still no call!!
The radiologist report was on the Mayo portal on June 24, but only compares the scan with the previous PET SCAN done at Mayo-not with the CT Scan from March (done locally), which had shown "marked improvement", shrinking of the tumors, etc.
Prior to our visit, we had sent the doctor a disc with the local CT Scan, and one would have thought the radiologist would have compared it with the new scan done on June 21. He did not, so it only shows improvement from the earlier PET SCAN done last December. Frankly, we already had that report!
So...we simply don't know if the trial drugs are still working!???
Frustrating, and confusing!

@burrkay, that sounds frustrating and confusing indeed. Did you also send a message through the portal? I hope you get answers this week.

Yep frustrating!Just recd a letter from Mayo today saying Dr Menefee is "transitioning out of Mayo Clinic" - so that I guess explains it.Thanks!

Perhaps that explains the delay in communication, but you should still be able to get the scans reviewed. Did they explain who will be reviewing your wife's tests?