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How do you find a Counselor to help navigate through prostate cancer?
Prostate Cancer | Last Active: 1 day ago | Replies (16)Comment receiving replies
After you get a counselor revisit the need/ benefit of long term androgen therapy (LT-ADT/LATD). There is evolving studies that indicate some patients may get marginal value beyond 6 months (ST-ADT/STDT) or no benefit. This comment is based on recently published genomic testing studies. The devil is in the details, age, metastasis status, Pet-Scan, quality of life issues, other health considerations. A lot of information relative to disease matters can be found on the PCRI.org
You-Tube. The videos have the date produced. Obviously newer information may be more relevant to medical treatment. Good Luck
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@thmssllvn Thanks! I called the PCRI helpline and had a very helpful return call last night, someone near my age who started PC much earlier than I, with the experience of 12 years on ADT and now 5 years off. At my next oncology appointment in November, my original plan was to abandon the suggested 2 years on Orgovyx and change to Nubeqa after one year, taking it for six months, then taking a holiday. Following my conversation with "Jonathan," I'm going to instead suggest adding Nubeqa and taking both it and Orgovyx for six months, then going off (assuming PSA continues to be undetectable). Life for my wife and me has changed so much during treatment and I'm hoping there will be some life left afterward. At my age, testosterone returning to near normal is basically a coin flip.