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Pancreatic Cancer | Last Active: 1 day ago | Replies (11)
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@val64 thank you for sharing your experience. I have since got to a few more 2nd opinions about HIPEC and all saying it's very invasive and surgeons wouldn't even attempt it unless CA 19-9 is stabilized which mine is not now.
Would be interested to learn more about the HIPEC in Germany if you still have the info handy.
How are you doing on clinical trials? The thing about KRAS trials I have found is once you were on one, you become ineligible for others. All the best!
Replies to "@val64 thank you for sharing your experience. I have since got to a few more 2nd..."
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I was looking at the info from a medical tourism company called Booking Health. It looks legit, but I really have no idea.
The clinical trial thing has not been going great. That first trial did kill off the bulk of my tumors, but 6 months later they were back to growing again. I felt pretty bad through most of the first three months, but pretty good the last three months. I'm glad I did that trial, even with the hospitalization at the beginning.
I think the next two trials slowed the cancer down somewhat, but I still "progressed" and got kicked off at the first CT scan (after 3 and 2 months respectively.). I quit the fourth trial after 2 weeks because of symptoms that were probably mostly from the cancer, but may have been exacerbated by the trial.
At the moment, I'm on a SOC treatment that I think is not working, so I'm back to shopping for another trial. Hope springs eternal.
If your cancer has become resistant to one KRAS inhibitor, it will probably be resistant to other KRAS inhibitors too, so it makes sense for them not to let you into another KRAS inhibitor trial.