@nancyjt, excellent question. The short answer is yes. Long answer….I am not sure what is happening. I was diagnosed with fibromyalgia 11-12 years ago at Mayo Clinic. They are the ones that have consistently told me 4,000 Tylenol daily is fine, stay away from NSAIDs.

I had originally gone to Mayo MN because my life-long cholesterol had shot up without any known trigger and I had some pain that went along with it. One step we took was discontinuing statins thinking they were the root cause, but pain continued. We waited and tried each new drug as they came out and once I was out of options I was referred closer to home for an every-other-week diaslysis-like process (LDL apheresis) to clean LDL cholesterol out of my blood.

I hit a circulation crisis a few years ago and ended up back at Mayo Clinic. They told me they knew what was happening but were not sure what to do about it. They told me I did not currently fit the criteria for fibro. Their approach would be to protect my heart, then address one symptom at a time. That is what we’ve done. They tell me what to do, I do it and improve. I eventually was able to get off the blood treatments and my cholesterol is better controlled than ever. I have been taking 4 drugs to treat my cholesterol, a couple I had said, “never again” yet here I am taking them.

I have a new PCP that is going back to basics so to speak. In addition to addressing the aspirin discussed above, he also recommended Cymbalta for muscle pain. It is helping. We are back to talking about fibromyalgia in the mix. So….I am not really sure. 🤔

I checked out your profile and found a comment you made about trigeminal neuralgia. This caught my attention because I had an ER visit earlier this year with mouth and face pain.

I wish I didn’t know what trigeminal neuralgia is. What is your experience with it, and is it resolved?