@surpriseca I was diagnosed with DCIS April of this year. I went for my biopsy in may. In June I underwent a lumpectomy, and the removal of 4 lymph nodes. I ended up with a staph infection where the nodes were removed and had to wear a drain for 2 weeks.
I finished my 21days of radiation therapy on August 28th.
The worst part was the weekend after radiation was completed. The burns were really bad, and lasted for a month. It is October 1, 2025, and I am still healing from the burns.
It is definitely a marathon, not a sprint. Now all the follow ups begin.
Good luck, hang in there, and take time to pamper yourself a bit. You deserve it!
I would really like to help anyone who is recently diagnosed or who has had a recurrence of DCIS. I am a very rare case, but have learned so much in a short time to make big decisions. We really need to understand our cancer, our choices, and constantly advocate for ourselves.
@plr I was diagnosed with DCIS after a breast reduction. They couldn’t tell if margins clear, just too close to edge and there is no way to know where in the breast it came from. I’m waiting for MRI, but to be honest with you, I am pretty sure double mastectomy is my choice. I know all the choices to deal with this cancer, but I am really focusing on what I can do to drastically decrease the chance of another cancer. I’m 63 now.
Yes, DCIS stage 0 and I’m 86 years old with a heart condition. Cardiology says that the anesthesia could result in a heart problem.
I’m probably going to go on an anti-estrogen medication and not have surgery and radiation.
Has anybody else found herself in this position?
Has anybody else decided to wait and watch?
I would feel much better if I knew other people with DCIS are not having surgery or radiation.
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Did you have the same surgeon for each lumpectomy? Did you have radiation?
@surpriseca I was diagnosed with DCIS April of this year. I went for my biopsy in may. In June I underwent a lumpectomy, and the removal of 4 lymph nodes. I ended up with a staph infection where the nodes were removed and had to wear a drain for 2 weeks.
I finished my 21days of radiation therapy on August 28th.
The worst part was the weekend after radiation was completed. The burns were really bad, and lasted for a month. It is October 1, 2025, and I am still healing from the burns.
It is definitely a marathon, not a sprint. Now all the follow ups begin.
Good luck, hang in there, and take time to pamper yourself a bit. You deserve it!
I would really like to help anyone who is recently diagnosed or who has had a recurrence of DCIS. I am a very rare case, but have learned so much in a short time to make big decisions. We really need to understand our cancer, our choices, and constantly advocate for ourselves.
@plr I was diagnosed with DCIS after a breast reduction. They couldn’t tell if margins clear, just too close to edge and there is no way to know where in the breast it came from. I’m waiting for MRI, but to be honest with you, I am pretty sure double mastectomy is my choice. I know all the choices to deal with this cancer, but I am really focusing on what I can do to drastically decrease the chance of another cancer. I’m 63 now.
Yes, DCIS stage 0 and I’m 86 years old with a heart condition. Cardiology says that the anesthesia could result in a heart problem.
I’m probably going to go on an anti-estrogen medication and not have surgery and radiation.
Has anybody else found herself in this position?
Has anybody else decided to wait and watch?
I would feel much better if I knew other people with DCIS are not having surgery or radiation.