Replies to @abi66 Thank you for sharing, abi66. Only some of your symptoms are similar to those of…

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Autoimmune Diseases | Last Active: Oct 17 10:11pm | Replies (8)

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@simonefromitaly

@abi66
Thank you for sharing, abi66.
Only some of your symptoms are similar to those of my husband (vomiting before beign diagnosed, fatigue now) but he also tried to reduce Prednisone and couldn't get below 10 mg: with 5 mg his lack of balance and cogntive fatigue worsened. Prednisone is the only therapy he is doing and makes he feel nervous and irritable, with no progress. That's why they decided to change the therapy, he is now waiting to start the Rituximab therapy (which is here off-label, so it takes a while to get all the permissions).
Hope your journey is going well!

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Replies to "@abi66 Thank you for sharing, abi66. Only some of your symptoms are similar to those of..."

abi66 | @abi66 | Sep 30 5:30pm

Hi @simonefromitaly
Your husband has followed a similar pattern to me for sure. I couldn't drop below 20mg Prednisolone before I became confused and was struggling with speech. I'm on LDN now and have slowly reduced the Prednisolone by tiny increments. Now on 15 and doing well so far. Hope your husband has success with Rituximab - my neurologist suggested that for me too but I decided against it due to the side effects.
Good luck with it all. Keep us posted.

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