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Peripheral neuropathy FREEZING

Posted by majax @majax, May 17 3:07pm

I fell and was told I had central cord syndrome. Later Diagnosed peripheral neuropathy, main symptom freezing cold both sides especially below knees. Both feet feel like encased in a block of ice. Anyone heard of this?

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gregd1956 | @gregd1956 | Jul 22 2:23pm

Freezing? Not that BUT it’s cold on my right-leg, foot, hand. I had a TBI member from a bicycle accident in 2012. I lost 80 % of my memory, a great job, my families for the last years.
Thx,
Greg D. @greg1956

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chivo2u | @chivo2u | Jul 22 2:56pm

That's me for the feet, especially the toes. Worse in winter.

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bgator | @bgator | Jul 22 6:37pm
In reply to @mailesmamagmailcom "Yes. It started in my feet then into my calves. When it first started in my..." + (show)
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Yes. It started in my feet then into my calves. When it first started in my calves it felt like I had frozen tube socks on. Now it has spread all the way up my legs. I'm so cold its debilitating. Even the space heater and electric blankets don't warm me up enough. Wear 2 pair of socks and toe warmers inside house shoes or tennis shoes. Just started Gabapentin, so hopefully once dose gets higher it helps. Rheumo said its not Raynards, so pain doc guessing its neuropathy. Also having severe nausea. Just read neuropathy can cause it, but not sure if that is the issue.

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Get genetic testing, then you will know what it is.

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mae1900 | @mae1900 | Sep 30 1:07pm

I’ve had PN for 16 years. My feet stay cold. I’ve had them checked with a temperature gun. My feet stay 35-40 degrees colder than the rest of my body. They do feel like blocks of ice that are going to burst. The pain is sometimes unbearable. I have two spinal stimulators implanted in my spine. Neither help with my feet. I have tried everything, I’ve heard of. To no avail, I’m falling 2-3 times a week. That’s walking with a walker. I pray that one day God will relieve my pain.

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John, Volunteer Mentor | @johnbishop | Sep 30 2:02pm
In reply to @mae1900 "I’ve had PN for 16 years. My feet stay cold. I’ve had them checked with a..." + (show)
Profile picture for mae1900 @mae1900

I’ve had PN for 16 years. My feet stay cold. I’ve had them checked with a temperature gun. My feet stay 35-40 degrees colder than the rest of my body. They do feel like blocks of ice that are going to burst. The pain is sometimes unbearable. I have two spinal stimulators implanted in my spine. Neither help with my feet. I have tried everything, I’ve heard of. To no avail, I’m falling 2-3 times a week. That’s walking with a walker. I pray that one day God will relieve my pain.

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Welcome @mae1900, Sorry to hear that you have not found anything to help relieve the pain and freezing cold symptoms in your feet. Have your doctors ever checked the blood flow in your legs to see if it may be causing your symptoms?

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