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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (128)

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I was at NJH last week and Dr Griffith sent the prescription to their pharmacy where I just signed my request. Otherwise I did not have to do anything else. It was 09/25 and actually they must have sent it to my insurance ( Medicare advantage ppo Aetna) the same day because it was approved 09/25. I was told someone will contact me in about 10 days and upon the delivery I must be present to sign the delivery. No one has contacted me yet. I am waiting and hoping it will help because unfortunately the ct I had at NJH showed progressing BE which depressed me- I do whatever I can and mucus does not move sitting there like glue. I was told to do AC 3-4 times a day. I started yesterday and my chest hurts, my throat is sore and I practically can do chores between. I hope I will find a way to stick to the routine and live life. May be soone is in the same situation and has advice- would be grateful.

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Replies to "I was at NJH last week and Dr Griffith sent the prescription to their pharmacy where..."

@lilianna How frustrating it must be for you with "mucus sitting there like glue,"
After reading that I had a thought about what I had happening with me. Don't know if this is something to think about or possible to 'cake up the mucus, however, I was sleeping with my mouth open at night and the mucus was so think and sticky and hard to get up and out. I think if I hadn't found my way to taping my mouth shut {before I was diagnosed with BE} at night with 3M Micropore tape, (as scoop would say, the size of a postage stamp) it would have possibly caused greater problems for me. I think it was drying me out with sleeping with the mouth open. I take it you do drink enough water also. Do you know if you have been sleeping with your mouth open?
Just a thought........ and not a scientifically supported thought but I think sleeping with the mouth open dries the airways and can cause a greater risk of respiratory infections.??????
Barbara

@lilianna 7% or 9% hypersaline?