Just an update on my Paget's journey: have had 7 surgeries since 2013, last being December 2024. Obviously it continues to return. Always difficult post-surgery but willing to continue as long as Paget's not invasive. Have tried Imiquimod, even tried using lidocaine ointment to quell the burning while using imiquimod, but still found to be too uncomfortable, so I stopped. However, I understand some folks have had great success with it, so definitely give it a try.
As for soothing regular itching, I have found success with silver sulfadiazine cream. Seems to calm the skin & relieve itching for several days.
After all these years, I have lost hope that Paget's will be gone. I have even lost hope that anyone is even trying to find the source of Paget's or a cure. Just hoping I can cope while my husband, with Parkinson's, is alive. I wish you all the best & am grateful for this forum. I have NEVER met a single human in person with Paget's.