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Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: 2 days ago | Replies (152)Comment receiving replies
@susanpagets
Hi I posted in the forum about getting some info on Imiquimod cream. I also have pagets and had surgery and it came back in few months so did laser treatment and it came back again. Now my dr wants me to try the Imiquimod.
I don’t know anyone who’s used it so wondering what to expect. Any advice would be appreciated thx
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@ichinnaya
It’s definitely worth trying imiquimod. I have used it twice. The first time I had to discontinue the 12-week treatment at 6 weeks due to the severe irritation it caused, but it did reduce the Paget’s. The second time I tolerated it far better, and the Paget’s was not detectable. I know it will recur, but I hope I can keep it controlled with the cream. Good luck!