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New pNET so scared

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (18)

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@lindabees Thank you for sharing. He has an oncologist that is local (we live in Southern AL), but he is sending us to a specialty clinic that specializes in nuclear medicine via infusions. What is PRRT?

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Replies to "@lindabees Thank you for sharing. He has an oncologist that is local (we live in Southern..."

@tgsenn70
Just in case, here's a listing of net specialists in Alabama. Its always best to see a net specialist for this disease if at all possible. This is a rare cancer and requires a team with expertise in it. You can also search for other states if you need to.
https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/?doctor=doctor&patient-group=patient-group&multidisciplinary-net-team-sites=multidisciplinary-net-team-sites&specialty=all&clin_state=Alabama&radius=5&zip=&practice_type=all#sortables
PRRT (Peptide Receptor Radionuclide Therapy) is an FDA-approved treatment for neuroendocrine tumors (NETs) that targets tumor cells by using a radioactive atom linked to a peptide that binds to somatostatin receptors on the tumors. The treatment involves administering the radiolabeled peptide intravenously, which then delivers radiation directly to the tumor cells, aiming to shrink tumors, relieve symptoms, and extend life. Common side effects include fatigue, nausea, and low blood counts, but rare but serious effects like kidney or liver damage are also possible