@merridee
Merridee, You are a brave soul, and I pray that you have many more easy, peaceful days and that other people fall in place to help you through this journey.
I am grateful to you for sharing about the bone pain. You have given me an insight into what might be causing my hubby to be more agitated than before. His face looks like he is in pain.....and I have been trying to figure out how to help him, but since he can not communicate - I have been feeling frustrated at my own apparent incompetence. I hope you can feel good that you have given me a path to pursue to make my soul mate's days a bit easier. He was the kindest man and while I wish this wasn't his journey, I can be grateful for gutsy people like you that are helping others along this hard path in life through sharing your pain and your honesty in facing LBD.
Wishing I could shake your hand and hug your neck....you will be in my prayers. May God bless you in many ways.....

@merridee Thanks for sharing. My Mom has Lewy Body and is losing weight. I didn't know this was part of this specific type of dementia. Mom fractured her spine needing surgery two years ago and it used to cause her pain. She had a lot of different bone pain but also has RA. Now, she rarely mentions pain but acts as though she's hurting. If I ask her, she will say yes, but can't quite pinpoint where it is.

I doubt all her pain went away and think maybe it is tougher for her to identify she's in pain. Sorry, I'm a little off-topic.

I just wish I could fly in, scoop up everyone with Lewy Body and make it all better. My heart hurts for you and all of us involved.