← Return to Brinsupri follow-up

Discussion
scoop avatar

Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (128)

Comment receiving replies
Profile picture for scoop @scoop

@cwal @crepass You asked about my experience with brinsupri, which I started about a week ago. So far I have not noticed any side effects. According to pulmonary early side effects (within the first week) can include abdominal pain and headache. Thickening of the skin and/or dental gum issues if they occur will happen months into treatment.

Daytime coughing jags have diminished and I'm sleeping better at night. Airway clearance continues to be the mainstay of treatment, which I continue 2x day. The secretions are lighter in color and the process is quicker than before I started Brinsupri*. I need to asterisk that last statement as recently I started a daily allergy pill which seems to have decreased the nasal drainage into my chest. I have an allergic profile along with asthma. Overall, my QoL has improved but honestly I cannot say that it's 100% related to Brinsupri. So, I'll split the difference and call it both! Hope others will weigh in with their experiences so far.

Jump to this post


Replies to "@cwal @crepass You asked about my experience with brinsupri, which I started about a week ago...."

@scoop I was wondering how long it took from the time your physician started the process of prescribing Brinsupri till you actually took the first dose? I am asking because my "general community based pulmonologist had me sign papers on September 17 and so far I have not heard a word. I did send a phone message to the office inquiring if they heard anything and so far radio silence. My pulmonologist has been very good to me but if I have to change to a Bronchiectasis center I will to help improve my QofL by getting more up to date treatment.