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Risk of passing epilepsy to children?

Epilepsy & Seizures | Last Active: 2 days ago | Replies (35)

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Profile picture for NJ Ed @njed

@santosha Hi Chris - Back in 1970, the seizure was called grand mal and now tonic-clonic seizure. I had one more the following year and was then placed on phenobarbital and dilantin. The seizures stopped and in the late 1970's was taken off phenobarb leaving me on 600 mg. of dilantin daily which I have been on for about 45 years and seizure free. Several neurologists said they would feel comfortable in taking me off my medication and I said no. Dilantin levels checked by primary doc yearly and holding in the 9 to 11 level. Lost my driver's license once and I'm unwilling to take any chances. Ed

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Replies to "@santosha Hi Chris - Back in 1970, the seizure was called grand mal and now tonic-clonic..."

@njed
Hi Ed!
Thank you so much for sharing these details with me.
I'm so happy to hear that you've been seizure-free for 45 years! I believe I wouldn't risk going off medications in that situation either.
So, if I understand correctly, you have a type of epilepsy syndrome that causes only tonic-clonic seizures, meaning there are no focal seizures (seizures that begin in one part of the brain) before your tonic-clonic seizures, is that right?
Chris