@JustinMcClanahan @harryboy7 @gently @mcconnectnow -
first, let me say my comments were respectful. There was one to Gently which I thought was private. When I realized it was not, I wanted to edit it (after 15 minutes!) but it would not allow. I reached out to Colleen she responded. I take all this very seriously - and I do my research before posting. To Justin: I posted the link where I got the rotation INCLUDING the thighs and underarm -- from TYMLOS! I also did an A1 search confirming. However, when Justin posted his link today it is not only restricted to the Abdomen but the AI search said the opposite of last week's search! I can't find my posts with the original Tymlos link, here, either. Did anyone remove them? That makes me feel kinda paranoid. I did ask Colleen to edit or remove. But it would have been helpful to see if my Tymlos website link was different than Justins. Here is what I think - I think when I started Tymlos a year and a half ago IT WAS what I indicated - thigh and belly rotation. I read the literature, I visited the website and I called the pharmaceutical company. Of course, I followed doctors orders. When I went to look last week my search was to an old cache where I could reaffirm the manufacturers published information. When I clicked on Justin's link this morning, it connected to the newer published info and AI also picked up that algorythem. Here's an 8 page brochure that doesn't even tell you where to inject! https://www.tymlos.com/pdfs/tymlos-patient-brochure.pdf
The website Justin provided says "ONLY" in the abdomen, and the literature with my pens now say "in the abdomen" but doesn't say "only" and this brochure says nothing at all: https://www.tymlos.com/pdfs/tymlos-patient-brochure.pdf
I defended the Tymlos phone providers in my recent conversations but I take it back. I called this morning to ask if they'd changed this situation since I began over a year and a half ago and "Anne" deflected my question in every way, until I got angry and asked for a supervisor. "They will get back to me." I won't hold my breath.
I do think I was RESPECTFUL but definitive in my conversation. Harry's being a nurse had zero to do with my research when beginning the medication. (I was 10 years in university with 4 degrees, I am not senile and know how to understand simple instructions for injections. I obviously know how to read with an almost 4.00 grade point average and had a science education. But, I APOLOGIZE that I am obviously INCORRECT - for the CURRENT circumstance and I stand corrected! I apologize if anyone was offended by my empathic defense. I did look it up first thing. This is just one of those things that must have been different when I started. I wrote to my UC Health Nurse Practitioner but she is out of office until next week. I am concerned now - that IF the protocol did change that no one advised me and it could be a reason why I didn't perform as well as I should have. I also had asked the question in this group if anyone had low statistical outcome because of the Insulin resistance and if they changed meds? No one responded. Okay, best, and thanks for the added communication. Apologies to Harry for the wrong gender comment, too!