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Volara-phobia

MAC & Bronchiectasis | Last Active: Sep 29 2:26pm | Replies (15)

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@cwal
I have been on brinsupri one month. I’m hesitant to share so soon how much change I have noticed in my quality of life because they say 2-3 months before expected “changes”.
These are things I have experienced. Decreased mucus production, decreased fatigue, decreased coughing, decreased use of cough drops. I must share at the same time I started on brinsupri, I had also started on stiolto to to control my worsening cough this past year. but I am hopeful about feeling better and staying healthier. my regimen of 7% nacl nebs and act twice daily remains the same. and i have been mac free for almost 3 years.but have BE. I hope this helps .

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Replies to "@cwal I have been on brinsupri one month. I’m hesitant to share so soon how much..."

@crepass
I would say that is some good results at just one month! Glad you are doing better! Thanks for posting an update about how the new drug seems to be working for you. Hope others will answer regarding this as well.

@crepass Would you mind copying and pasting this helpful post to the new thread @scoop just started?
https://connect.mayoclinic.org/discussion/brinsupri-follow-up/
I would do it for you, but it's not possible.