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Risk of passing epilepsy to children?
Epilepsy & Seizures | Last Active: Oct 13, 2025 | Replies (35)Comment receiving replies
Hi @njed
Like you, I developed my epilepsy due to an accident when I was a child. It took some years for the epilepsy to show its face in puberty. I'm the only one in my family with this condition.
I have temporal lobe epilepsy with mesial sclerosis. I'm curious about your experience—what type of epilepsy do you have? I'd be interested to hear about it if you're comfortable sharing.
Thank you!
Chris
Replies to "Hi @njed Like you, I developed my epilepsy due to an accident when I was a..."
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@santosha Hi Chris - Back in 1970, the seizure was called grand mal and now tonic-clonic seizure. I had one more the following year and was then placed on phenobarbital and dilantin. The seizures stopped and in the late 1970's was taken off phenobarb leaving me on 600 mg. of dilantin daily which I have been on for about 45 years and seizure free. Several neurologists said they would feel comfortable in taking me off my medication and I said no. Dilantin levels checked by primary doc yearly and holding in the 9 to 11 level. Lost my driver's license once and I'm unwilling to take any chances. Ed