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Colleen Young, Connect Director avatar

Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: 2 days ago | Replies (558)

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Profile picture for dlsmabrey @dlsmabrey

I have MBC stage IV with Mets to bones initially. I was on Kisqali, Letrozole and Xgeva. Diagnosed April 2023.
I started having what I thought was sciatica in September of 2024. Turned out it was a tumor impinging on my sciatica nerve. I started on Chemo (Enhertu) in December.
I am thankful for the treatments available. The chemo has minor side effects and my scans show improvement.
I have tiptoed around the question....how much time do I have left?
I asked my surgeon when I was first diagnosed and she said typically 3 to 4 years... 3 years would be 2026.
On the outside I know everyone thinks I am doing so well. I even fool myself sometimes. It seems so unreal and sometimes I just cry uncontrollably when I'm alone.
I just don't feel like I'm dying. But I am scared.

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Replies to "I have MBC stage IV with Mets to bones initially. I was on Kisqali, Letrozole and..."

@dlsmabrey I'm so sorry that you are going through this. I'm sure it's very scary for you, it would be for anyone. Hopefully you have support from family and close friends. I know it's easy for me to say just enjoy the little things but maybe that could distract you from your thoughts.