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DiscussionSo, now just still waiting, losing my mind being worried and new quest
Neuroendocrine Tumors (NETs) | Last Active: 39 minutes ago | Replies (20)Comment receiving replies
Replies to "@kurtjazzy01 no alcohol when, way back before diagnosis or since youve been having surgeries and diagnosed..."
@jsudjian Good morning, I was in a similar situation, was on Octreotide injections for a little over 2 years. Primary Tumors started in lower GI, and spread to liver. They were pretty stagnant for the first year, no new Tumors, but a small few were still growing (very slowly) . My medical team at Mayo, recommended I concider starting PRRT treatments soon. I was given some information on Lutathera, and after little more research on my own
I decided to go for it. Scans after the 4 treatments showed it was successful, some small tumors were not visible, and the larger ones decreased in size. As far as side effects from the treatments, I really didn't have any, other than fatigue, for a day. For me it was the right decision, best wishes for you ..