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So, now just still waiting, losing my mind being worried and new quest
Neuroendocrine Tumors (NETs) | Last Active: Oct 7 8:40pm | Replies (25)Comment receiving replies
Hello @kurtjazzy01 and welcome to Connect. I see from your post that you had surgery 18 years ago for several tumors in the liver and that your doctor has now suggested PRRT.
We have several members of the NETs group who have had PRRT, including @sophiarose, @vinnie694, and @dbamos1945. Most have had success with reducing the number or size of the NETs with this treatment. I am tagging them so they can post with you about their experiences.
How are you feeling? What type of symptoms are you having now?
Replies to "Hello @kurtjazzy01 and welcome to Connect. I see from your post that you had surgery 18..."
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@hopeful33250 I feeling fine I had my yearly CT Scan and doctor told me tumors are really growing and I need the PRRT soon. I had taken shot for about 5 years .I had stopped 2 different times taking them last time was 3 years ago.