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Have you checked your Vitamin D?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 28 12:33pm | Replies (18)

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@dadcue OMG this is all so confusing!!!!
I track everything. If I can get through a painful lifting session one day, the pain level for my arms goes from a 5-6 to a 3-2 the next day every time.
My legs are always 3-2, but I run or walk every single day.
I was in a car for a 10 hour drive and in the 24 hours afterward, my arm pain level rose to an 8-9. Horrible! My legs to a 7.
I'm trying to figure this all out without knowing anything about biology and drugs.

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Replies to "@dadcue OMG this is all so confusing!!!! I track everything. If I can get through a..."

I didn't know anything about endocrinology and the naturally occurring hormone called cortisol that the adrenals produce. I was trying very hard to understand autoimmune disorders and making sense out of everything the immune system does including what happens when the immune system goes haywire.

When someone explained to me how the endocrine system works and especially the HPA axis, everything made more sense to me. Understanding how Prednisone disrupts how the endocrine system is supposed to work explained why it was nearly impossible for me to taper off prednisone.

Cleveland Clinic explains the HPA axis well:
https://my.clevelandclinic.org/health/body/hypothalamic-pituitary-adrenal-hpa-axis
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The following explains what long term Prednisone does to the HPA axis.
https://www.droracle.ai/articles/131610/give-me-detailed-info-on-chronic-prednisone-use-and-the-hpa-axis