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A Life Well Lived

Gynecologic Cancers | Last Active: Oct 4 12:23pm | Replies (21)

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@alohman08 Don't know if mine is HERS+ yet. They are doing genetic sequencing now. I may have complicated things by having my surgery done at UCI where the best surgeon was (published with MSK) and UCLA where the best chemo oncologist is. It's an effort to get info shared between the two sometimes but it's worth it for me. I believe I have among the best in the industry for each discipline; and all use MSK for independent evaluations.

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Replies to "@alohman08 Don't know if mine is HERS+ yet. They are doing genetic sequencing now. I may..."

@inquirer It sounds like you are in the very best of hands...When I was diagnosed and told that my cancer was rare and aggressive, I saw 2 surgeons who came recommended, I went with the doctor from MSK, because I felt MSK would be a better choice than my local hospital in NJ.. I moved very quickly and had surgery 14 days after my diagnosis, the aggresive nature of the cancer scared me so I moved as quickly as possible to have it removed. Looking back now, I wonder if I should have done a little research on finding the right surgeon for me?? water under the bridge at this point...when my cancer recurred, again I moved quickly and was sent to an oncologist at MSK that the radiologist who was seeing me after my surgery, sent me to. She is very young and apparently does research 4 days a week and see patients one day....I started chemo 1 week after I was diagnosed with a recurrence. Everything was fast tracked because of the aggressive nature of this cancer. My point being that I did not take time to research what doctors would be the best ones to have treat my cancer . I felt that I had to act quickly and that MSK would provide the proper care.. I'm alive and very well 4 years later after 2 recurrences ....I've been able to continue doing everything that I love to do...pilates 5 mornings a week pickleball 3 times a week and 4 mile walks 4 times a week. Playing with my grandkids, walking and playing with my newly adopted pup. Enjoying the company of friends ...life is good and I am grateful for the care I have been given ....I'm certain that you will do extremely well with whatever treatment you receive. Please keep me updated !