I'm so sorry to see all you are going through. While I have not experienced what you are experiencing. I did go through 6 years of gut issues - GERD (acid reflux), foods not being digested well, feeling fatigued. Each time I was put on the PPI, I felt great, but once I went off the PPI, my symptoms returned. After my third endoscopy
( scoping the GI tract), the doctor who performed the endoscopy told me to never take that med again because my cells were hypertrophic (meaning very enlarged) - the med is a PPI (proton pump inhibitor) which essentially reduces the acid in the stomach for digestion. Previously, I was also trying other over the counter remedies to no avail.
I was then left to figure this out since my doctor didn't know what to do if I could no longer take a PPI. I became familiar with Functional Medicine which saved me. If you are not familiar with Functional Medicine, it is looking at the root causes of your symptoms/illness, not treating symptoms. My FM doc tested me for so many things my other doctors did not test for - bacterial infections, yeast infections, fungal infections, parasite infection and mold exposure. I tested positive for ALL of those because my GI tract had become permeable - meaning it leaked these infections into my system.
If you are interested in finding one in your area, here is the website - ifm.org. You can search for doctor by city and state and read their bios and what they actually treat. It took me 2 tries to find the one that was knowledgeable with GI issues. I highly recommend functional medicine as again, they look for the CAUSES of your symptoms, NOT the SYMPTOMS. Treating the symptoms is a band aid but the infection needs more than a band aid to CURE you.
I wish you the best!