← Return to Living with colorectal cancer - Meet others & come say hi

Discussion
Comment receiving replies
@bonnieb81

Thank you very much Colleen, I’m not holding up well at all, being a full time caregiver to my husband... slipping into more dementia (Lewy and Alz + Parkinson symptoms...) I’ve had no help.. if I’m facing a section of colon removal, and for sure the operation for polyp in my appendix... I have no I’m home help, so I’m working on that. He’s been in 2 rehabs and 3 hospitals for low-flow strokes due to hypotension, autonomic BP, and now Postprandial symptoms, his systolic drops 40-60 points after eating, tiny meals, or just a pc of toast. All clinical trials seem to cut-off at 85.. he will soon be 90!! The Drs. Which are over 10 neurologists don’t seem to be able to come up w/ any help at all. So, I’ve really had to be full time nurse... especially with his strange BP symptoms. Waiting to hear the new results on colonoscopy due to the catscan in Aug. 2019... showing “concern for malignancy” I worry about the lack of expediency... which now the ileocecal valve and cecum are added to the ‘concern... everyone thinks I’m 60 instead of 82, while flattering, I’m afraid my insides are much older looking and acting!!! Thank you so much. Mayo in Jackdonville last said, if malignancy is found, I should contact them again. (Jacksonville🙏) for their help... I’m losing confidence and faith in my current physicians.

Jump to this post


Replies to "Thank you very much Colleen, I’m not holding up well at all, being a full time..."

Beautiful picture, @bonnieb81 I hope you'll add it to your profile. Here's how to update your profile: https://connect.mayoclinic.org/page/about-connect/newsfeed-post/how-to-update-your-profile/

I'm so sorry to hear that you have multiple health issues to manage and the increasing caregiver duties for your husband. You're not alone. You might wish to also become a member of the Caregivers: Dementia group to get support from others. Click here: https://connect.mayoclinic.org/group/caregivers-dementia/

I strongly encourage you to contact Mayo Clinic in Jacksonville again. Here's the number: http://mayocl.in/1mtmR63
You can self-refer or ask your doctor for a referral.

Saying a prayer for you and your husband. I too am the caregiver for my life partner who is 83 so I do understand your situation a little bit. I do have family and a neighbor that have been so helpful with meals and support. I had my surgery September 11 and am doing really well except for the fatigue. See the oncologist this week for chemo advice.