← Return to video from PCRI suggests long-term beam radiation BCR rates are 50%

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Profile picture for brianjarvis @brianjarvis

@jc76 I had the opportunity to be in either a proton vs photon study or a proton study with three arms (39 sessions at 2.0 grays each, 28 sessions at 2.5 grays each, or 20 sessions at 3.0 grays each).

I asked my RO which one they actually had the best results with in practice? He replied “28 sessions at 2.5 grays.” I said let’s go with that.

I can appreciate helping future guys, but my priority was in treating my disease. (On the other hand, if I had no hope of success, then I certainly would have considered a clinical trial.)

With that understanding, my RO gave me the option of having my proton radiation treatment results submitted into a registry, which I accepted. (https://clinicaltrials.gov/study/NCT02040467). Hopefully, that will help someone make a treatment decision one day.

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Replies to "@jc76 I had the opportunity to be in either a proton vs photon study or a..."

@brianjarvis
My involvement with UFHPTI is not a clinical trial. I had 30 rounds of proton radiation prescribed to me by the R/O after their physics deapartment makes their reocmmendations.

The study I am in is looking at the success, side affects, issues, problems of proton and photon radiation treatments. Not many currect long term studies being done. The study is to look at those who have already gone through treatments.

I hope I did not infer I was in clinical trial. It is an after treatment study.