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Volara-phobia

MAC & Bronchiectasis | Last Active: Sep 29 2:26pm | Replies (15)

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@coffcoff I saw Dr Haas at NJH 1.5 years ago. Fortunately and ironically I may add, the most current scan I had in 10 years actually showed some improvement in my MAC right before I finally made it to Denver. (or at least no further damage), so the dreaded Foursome of drugs was not recommended. The big takeaway from my trip was “airway clearance.” However, I was told this would not really improve the disease, but was merely good “lung hygiene.” Im hearing otherwise in this thread, right? Anyway, I couldn’t do the daily regimen because I spotted blood, and hemoptsis was a big problem for me. My voice is very uneven for years now and I can’t sing anymore. I miss it terribly as it was part of my spiritual practice.

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Replies to "@coffcoff I saw Dr Haas at NJH 1.5 years ago. Fortunately and ironically I may add,..."

@ellenblythe I'm so sorry to hear about the change in your voice. It's probably due to all the coughing. You didn't mention whether or not you have bronchiectasis but I assume you do. Airway clearance is the cornerstone of managing bronchiectasis and keeping MAC at bay. It will not improve the lung damage you already have but it can keep it from getting worse. Maybe your doctor can get you on brensocatib, the new drug for bronchiectasis. That and airway clearance is all we've got right now.