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A Life Well Lived

Gynecologic Cancers | Last Active: Oct 4 12:23pm | Replies (21)

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@alohman08 Thank you! I'm in California, but I flew to MSK twice to consult with oncologists. They were excellent! My oncologists here in Los Angeles consulted with them too, due to the rarity of this cancer, hoping they had seen more stage 1 cases. Seems like the early stage of our disease is the most difficult to discern. In later stages, treatment is clearer because they just do everything.

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Replies to "@alohman08 Thank you! I'm in California, but I flew to MSK twice to consult with oncologists...."

@inquirer Good morning...it sounds like your doctors are as informed as the oncologists at MSK which should give you some comfort...Is your cancer HER2+ ? Mine is and apparently there are more treatment options for HER2+ cancer. I agree with you that there doesn't appear to be a proven preventative treatment to stop the recurrence of a cancer that presumably was found and removed in its entirety with surgery.