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@inquirer Hi I asked my doctor about chemo and radiation and he told me that chemo was not necessary and would not change the possibility of recurrence...he recommended three treatments of internal vaginal radiation which was awkward but quick (4 min) with no side effects. I wonder if I had had chemotherapy would the cancer have recurred 18 months later ? He told me before I had surgery that the cancer was rare and aggressive and although caught very early, probability of recurrence was high....After surgery with no spread anywhere not even a lymph node....he only recommended radiation and i listened. I'm being treated at MSK in NY. I beleive that I am being treated appropriately...it just sucks that I am still in treatment with a form of chemo which thankfully has stopped the cancer ( PET Scan in July was NED) but it is a maintenance drug with no end in sight......if it keeps cancer at bay, I'm happy and I pray that it does...I'm told that if it should stop being effective, there are other good drugs to tackle this cancer..... You are the first person I have heard from who has the same nasty cancer....I wish you the best and know that chemo sounds worse than it has been for me and lots of other people....keep a positive attitude and live a healthy life style and its a bump in the road nothing more !
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@alohman08 @inquirer You both highlight the importance of going to a comprehensive cancer center such as MSK (Memorial Sloan Kettering) in NYC.
National Cancer Institute - NCI Designated Centers
-- https://www.cancer.gov/research/infrastructure/cancer-centers
I went to Mayo Clinic in Rochester, MN. It was inconvenient. When I was diagnosed with endometrioid adenocarcinoma (one of the most common endometrial cancers) I would have asked for appointments at another comprehensive cancer center such as MSK or MD Anderson if I thought it was needed. Local care feels good because you can stay at your own home and extensive travel isn't needed. But....if it works I want the expertise of well, the experts.
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@alohman08 Thank you! I'm in California, but I flew to MSK twice to consult with oncologists. They were excellent! My oncologists here in Los Angeles consulted with them too, due to the rarity of this cancer, hoping they had seen more stage 1 cases. Seems like the early stage of our disease is the most difficult to discern. In later stages, treatment is clearer because they just do everything.