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need help: how to cut back time spent managing BE and MAC

MAC & Bronchiectasis | Last Active: 13 hours ago | Replies (29)
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@pacathy
I guess I did not feel a need for compensation since I was feeling fine. Most of the time I do not have any difficulty because of BE+MAC, but I keep well hydrated and moving. I also try practicing deep abdominal breathing just a couple of minutes several times during the day, when possible I use an Autogenic Drainage App. I like to walk, try to do 6 km in an hour when possible, but during vacation it was the sightseeing that I counted as exercise. I mostly take it easy, the difficult part for me is sanitizing the nebulizer, if not al home. Hopefully you will find a way and not get an exacerbation. Good luck.

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Replies to "@pacathy I guess I did not feel a need for compensation since I was feeling fine...."
pacathy | @pacathy | Sep 28 7:10pm

@2019mc Thanks. That sounds like what I did on a hiking trip last fall. Deep breathing, walking and AD app. I took inhaler instead of albuterol neb, with doc's Ok. .
I am not as stringent as you at home and don't double sanitize my neb cups. I rinse and use Bololo, which I love for simplicity. The doc from NJH said in lecture posted a few days ago that both it and the Mandela bags work.
In that trip, I had to sanitize a sinus rinse bottle and spacer and took a collapsible bowl. I also happened to throw in a small thermos bottle. That paid off- one hotel didn't have a hot pot in room or microwaves available, but was happy to fill thermos with boiling water from kitchen. I'd soak equipment in soapy water then rinse in more boiling water.
I did fine during trip, but got sick with Covid 2-3 days after I got home. I wore masks, so don't beat yourself up.
I blame it on a long layover and too many people.
In states, I use microwave Mandela sterilizing bags for road trips and take a lot or bowl to wash it or rinse it before .

I wonder if the new new med would help you. Good luck with traveling. Stay well.

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