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Yes, I finally found out what the true cause of my pain is and it is TMJ. I'm going to a TMJ specialist, but for now I was thinking about going to a Chiropractor? Have you heard of doing that? I don't have a lot of experience with them.

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Replies to "Yes, I finally found out what the true cause of my pain is and it is..."

@linda1976 @linda1976
Yes, I have. I don’t mess with adjusting things like personally. I have EDS and really bad TMJ. If I did any sort of adjusting to that, I would put myself in a place where I wouldn’t be able to close my mouth. There is a little disc that sits in between your jaw that when you open your mouth, it will slip in and out and that’s what causes that clicking.
After reading through all of your post, I have been struggling for the last two years with extreme headaches and a lot of the same symptoms that you do. I finally saw a new Neuro ophthalmologist and was recently diagnosed with Idiopathic Intracranial Hypertension (IIH) after spending two years at Mayo seeing a neurologist an Neuro ophthalmologist being completely gaslit!

I am on day three of the new medication and I can already tell a difference and have some relief in the amount of pressure that is in my head.
So I noticed in all the things that you were going through that was something that no one had thrown out there as a suggestion so I just wanted to give you that one to maybe look into too