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DiscussionHow many cores? And follow-up with results received
Prostate Cancer | Last Active: Sep 25 8:15am | Replies (17)Comment receiving replies
Replies to "I am concerned with the "Perineural invasion identified". Ironically, my Pi-rads 4 lesion is benign, but..."
@justme129
Moffitt is considered from what I read as an outstanding cancer center. You mentioned Mayo Jacksonville for second opinion. I have been a patient at Mayo Jacksonville since 2006. It is where I had my DRE, MRI/Contrast, and my biopsies done. But I chose UFHPTI for my radiation treatment because Mayo Jacksonville could only offer photon radiation and I preferred proton.
I think but not sure if you contact Mayo Jacksonville and asked for second opinion you might be able to send them your medical records and get a second opinion. In my case Mayo Jacksonville did additional tests that you have had. They added Decipher and bone scan. When I got second opinion at UFHPTI they ordered, and I got PSMA.
I noticed your Gleason score of 3+3=6. Let me suggest you look up Gleason Scores and their meanings. A 3+3=7 is consider low score and you have lots of options. I am not a medical expert but having gone through this with a Gleason score of 3+4=7 I wish I had your score of 3+3=6 if that tells you anything.
PNI is very common and usually not considered an adverse feature. Definitely get the second opinion and also talk to your urologist at Moffitt. You may be a candidate for active surveillance with only Gleason 6 cores. But two of the four have a high volume, which may be a concern.
Get a second reading of your biopsy too, ideally before seeing someone at Mayo. Johns Hopkins is a good place for that.